CF follow up

Kelsie had her routine CF followup today and she is doing fantastic! Her growth is amazing and lungs are healthy. She weighed 29lbs 2oz!! Her weight for height is over the 50th percentile which is just wonderful for a child with CF. Even though she is gaining weight, her stools have been changing suggesting she may not be absorbing as well, so we just went up on enzyme dosing last weekend. She is now getting 4 1/2 enzymes with meals and 3 1/2 with snacks. Everything is staying the same. Prevacid and Zantac for reflux, Flonase nasal spray for congestion, hypertonic saline 7% twice a day with PT, Miralax for constipation (which we dropped down to 1 tsp twice a day), and the CF multivitamin. She just got over 2 weeks of nasal congestion from a little cold but didn't have any coughing with it and got over it without developing a sinus or ear infection. So she never needed an antibiotic!! Hooray!!! I was so thrilled! We scheduled her next PFTs (pulmonary function test- with sedation again) for May 9th.


We are so thankful she has done so well, so far! 

Waiting in the waiting room. If only she were still like this for more than 5 seconds!! Once we were in the room, she was into everything. She was even so kind as to add some crayon artwork to the back of the chairs and walls. (Don't worry, it was just a little bit, I did stop her as soon as I saw her). She also enjoyed playing with the bandaids and tongue blades. (they are silly enough to put medical supplies in the drawer below the exam table). But she had fun. At least she enjoys going there!